Pachyonychia Congenita Project Europe

About

PC Project Europe connects patients, researchers, physicians, and industry partners to help those who suffer from the debilitating effects of PC. We are a subsidiary of our parent company the PC Project, based in the United States. We engage with patients and professionals, offer support to patients and their loved ones, and partner with scientists and industry to advance PC research and drug development. We also engage in fundraising activities to support these activities. Pachyonychia Congenita is one of nearly 7,000 rare diseases, 2,000–3,000 of which are rare genetic skin diseases. Together with the PC Project and with the work of our international consortium of professionals, the participation of genetically confirmed patients in our registry, and the support of many givers, we have helped educate the world about PC and are on the path to effective treatments for patients.

Where we work