Cerebrospinal Fluid Leak Association

About

We are dedicated to supporting CSF leak patients, working to ensure every cerebrospinal fluid (CSF) leak is diagnosed promptly, treated effectively, and prevented wherever possible to reduce suffering and avoid serious complications. CSF leaks are curable, yet too often missed or misdiagnosed. We empower patients to seek appropriate healthcare and treatment through practical advice, support, and advocacy. We campaign for equitable and timely access to holistic care for all CSF leak patients. By collaborating with leading experts and those with lived experience, we raise awareness, advance understanding through education, and drive progress by supporting research. Our aim is simple: to help as many people as possible access best-practice care, achieve a cure, and return to living pain free and free from harm.

Where we work