XLH UK
✓ Registered charity · 1196811About
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
Where we work
Throughout England And Wales Ireland Scotland Jersey Guernsey Isle Of Man Northern Ireland
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