MYHRE SYNDROME UK & EUROPE

About

To provide support, respite & counsel to those suffering with or supporting those who are from Myhre Syndrome. Activites are not limited to interventions, with support & advice, alongside building of Myhre Awareness across the UK, and the building of an Advocacy Group. Strategically, inception of a Myhre Centre of Excellence & strong associations with sister organisation's who share our outlook.

Where we work