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POMPE SUPPORT NETWORK

✓ Registered charity · 1186383

About

The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences

Where we work

Throughout England And Wales Northern Ireland Scotland

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Registered charity no. 1186383 · England & Wales