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INTERNATIONAL NIEMANN-PICK DISEASE REGISTRY

✓ Registered charity · 1175311

About

The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.

Where we work

Throughout England And Wales

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Registered charity no. 1175311 · England & Wales