BARTH SYNDROME TRUST
✓ Registered charity · 1100835About
Barth syndrome is a rare life-threatening genetic disorder that affects boys. We support families and provide them with the tools for survival and quality of life. We work closely with the scientific, medical and educational community to promote early diagnosis, research and treatment. Membership is free and provides access to specialised multi-disciplinary clinics and international conferences.
Where we work
Throughout England And Wales
Contact
Annual income £16k
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