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EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE

✓ Registered charity · 287122

About

Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.

Where we work

Throughout England And Wales

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Registered charity no. 287122 · England & Wales